OUR VISION: A world in which every child with Progeria is cured
OUR MISSION: To discover treatments and the cure for Progeria
and its aging-related disorders, including heart disease.
Get Involved
Today, over 80 children from 30 countries are enrolled in a PRF-funded drug trial. Because of your support, the children are receiving the benefits of lonafarnib: stronger hearts and longer lives.
About PRF
Your donation helps The Progeria Research Foundation treat children with Progeria today, and cure them in the future.
News
Meghan’s March Madness!
April 1, 2019: Thank YOU for celebrating Meghan’s March Madness with us! Because of all of you we raised over $19,000, which will go directly to our mission to find the cure! We hope you enjoyed getting to know Meghan. If you haven’t seen her video - check it out now!
Our 2018 Newsletter is HERE! Read about our remarkable progress over the past year, the latest developments in our clinical trial, our wonderful Chapters and Volunteers and so much more.
May 16, 2018: On the Heels of the JAMA Study, PRF and Eiger BioPharmaceuticals Partner to Pursue FDA Approval of Lonafarnib. Collaboration marks first therapy submission for the treatment of Progeria. If approved, children may access drug by prescription instead of clinical trial. Click here for more details.
April 24, 2018: Global Study Published in JAMA Finds Treatment with Lonafarnib Extends Survival in Children with Progeria!
A new study published in The Journal of the American Medical Association (JAMA) brings new hope and optimism to the Progeria community. Click here for more details.Events
- May 11, 2019 in Flat Rock, MI: 14th Annual Miles for Miracles 2 Mile Walk and 3 Mile Fun Run
- May 13, 2019 in Ipswich, MA: Cure Cup Classic Golf Tournament at the Ipswich Country Club
- July 27th, 2019 in Lexington, KY: The 9th Annual Zach Attack Ride for Progeria – details to follow!
- September 7, 2019 in Peabody, MA: 18th Annual International Race for Research – details to follow!
- September 8th, 2019 in Flourtown, PA: The 9th Annual Make-a-Splash fundraiser with Nathan and Bennett – details to follow!
- September 13th, 2019 in Lexington, KY: The 1st Annual Team Zach Attack/Kentucky Chapter Rock the Night fundraiser
- ANY DAY in 2019 – Anywhere: HatsON/Jeans Days for Progeria 2019. Join us ANY DAY that works for you!
- April 25, 2020 in Boston, MA: Night of Wonder Gala: Above and Beyond – Soar to the CURE! (details to follow)